Sunday, October 31, 2010
A Spooktacular Halloween
Friday, October 29, 2010
Carson's Birthday Part 2
Again, I was not invited. Seriously, what did I do?!?
That night he allowed us to meet him and take him to dinner. FYI: Don't go to Red Robin if you want them to sing to you on your birthday & give you a free dessert. They don't do that. Whatever!
Happy Birthday Carson! I'm so glad you had a special day & I hope your scooter comes soon. Then maybe you'll like me. :)
Tuesday, October 26, 2010
Happy 6th Birthday Carson!
(I wasn't going to buy school pictures but when he looked at me with his big brown puppy dog eyes and told me they wouldn't send him home with his pictures unless I sent money with him, I caved and bought pictures. Man, the school sure knows how to get your kids to spend your money!)
- Carson is a great helper and I don't know what I would do without him!
- He loves pizza, ice cream, chocolate milk, and pretty much everything. He packs away a lot of food & I don't know what he does with it because he is a slim little thing.
- He gets scared pretty easily. We'll see how Halloween goes....
- He is so good with his brothers, especially Easton.
- He loves superheros, playing with friends, watching TV, playing the computer & wii.
- He loves his bike and has pretty much worn it out.
- There are about 5 girls with crushes on him and they call or come by to play daily.
- He is so smart and doing so great in school.
- He is a really good boy, but can get a little cranky if he is tired or hungry (typical man stuff).
- He will read to Wyatt every night before bed.
- He is very responsible and is trying so hard to be a good boy.
Tomorrow is the big day. He has the whole day planned out. I'll post about it all later. Happy Birthday Carson! We LOVE you!!! We couldn't ask for a better son or brother! Thank you for being you!
Friday, October 22, 2010
Easton 5 Months
- He LOVES his brothers. He is always smiling at them and looking for them when they aren't around.
- He is "talking" a lot more.
- He hates being left in a room alone.
- He will be moving out of our room this weekend--I hope it goes well!
- He wants to put everything in his mouth.
- He loves playing with toys.
- He is a home body and doesn't like crowds or noise.
- He is very cuddly and loves to be held while he sleeps.
- Has had rice cereal once and loved it.
- He cries in the car when it is dark, but will stop crying if you turn on the lights inside the car.
- He hates lying on his tummy (I think it hurts b/c of the surgery) and will roll from his tummy to back when he feels the need.
- He loves being sung to.
- He is very very spoiled!
We sure love you, Baby Easton! It has been a rough month for you and we hope you get better from here!
Wednesday, October 20, 2010
Halloween party in Henefer
Wyatt was scared of Grandpa & didn't want to be so close to him.
Wyatt Funnies
Wednesday, October 13, 2010
Tuesday, October 12, 2010
Surgery Update
Thank you so much for your thoughts and prayers! We are so blessed, and we can feel a special spirit has been surrounding Easton at this time! I have such great family and friends--thank you so much! I'll post some pictures later.
Friday, October 8, 2010
The mysterious rash has a name...
- The presence of too many mast cells in the body
- Mast cells are present in connective tissues (skin, lymph nodes, liver, spleen, linings of lungs, stomach, intestines)
- Mast cells are part of the immune system and release histamine
- Symptoms: abdominal pain & cramping, vomiting, diarrhea, skin lesions, ulcers, and musculoskeletal pain
- Can treat symptoms but no cure for the disease
- Considered a mysterious disease to doctors
- Children can outgrow it when mild
- Rarely, can become leukemia
- Children with extensive lesions are high risk for shock or sudden death from anaphylaxis
- Cannot have medications that release histamine (morphine, codeine, ibuprofen, etc...)
Now what?
Easton has been to the hospital twice this week for blood tests. We need to make sure he is safe for surgery. They want him to go to grand rounds for dermatology. They are going to start some medications. Still planning on surgery for his kidney on Monday. I have been told I have a great doctor that has Easton's best interests at heart. He went on his day off to Primary's to meet with Easton's surgeon and a hematologist, and is also communicating everything to his pediatrician.
I am so grateful for prayer. For support of loving family and friends. I hate knowing he has something they don't know a lot about and there is no cure. I am hopeful he will outgrow it but still worry like crazy! I hope he isn't always in pain. What does his future hold? I pray a long healthy life! And I am still wishing it was me NOT him.